Month: April 2023

Patient Experience: Transparency At End Of Life

Posted on by Jenni Daniel BSN, RN

Transparency is crucial when cancer has metastasized, and the patient is nearing the end of their life. In these circumstances, honest communication between healthcare providers, patients, and their loved ones is essential. It enables patients to make educated and informed decisions about their care and prepares them for the next steps.

When cancer has metastasized, the patient and their loved ones must be informed of the available treatment options and the likely outcomes. They should be made aware of any potential side effects and the impact of the treatment on their quality of life. It is also important to discuss the possibility and benefits of palliative and hospice care. This way, patients can make informed decisions about their care, and loved ones can prepare themselves emotionally and practically for what lies ahead.

During this time, it is also important to acknowledge the challenges and fears that patients and their loved ones may be experiencing. Patients may be worried about the pain and discomfort associated with their illness, while loved ones may be concerned about how to provide the necessary care and support. Acknowledging these fears and concerns can help patients and their loved ones feel understood and validatd, and can create a more supportive environment.

It is also essential to discuss arrangements that may need to be made, such as end-of-life care and funeral arrangements. These discussions can be difficult, but they are necessary to ensure that patient’s wishes are respected and that their loved ones are as prepared as possible for what lies ahead. It is important to involve patients and their loved ones in these discussions to allow them to ask questions and express their concerns.

In addition to medical care, patients nearing the end of their life need emotional and social support. They may feel isolated and alone, and it is important to provide them with opportunities to connect with others and discuss their feelings and concerns. Loved ones also need support during this time, as they may be experiencing grief and feelings of loss.

In conclusion, transparency is necessary when cancer has metastasized, and the patient is nearing the end of their life. Honest communication between healthcare providers, patients, and their loved ones can help patients make informed decisions about their wises, and care and prepare for what lies ahead. It is also essential to acknowledge the challenges and fears associated with this time, discuss arrangements that need to be made, and provide emotional and social support to patients and their loved ones.

Palliative Care Patient Experience

Posted on by Jenni Daniel BSN, RN

Palliative care is a specialized medical approach that aims to improve the quality of life of patients who are experiencing cancer or a serious illness. Palliative care can be provided in conjunction with cancer treatment, and the focus is to manage symptoms, provide emotional support, and enhance the overall well-being of a patient. In this article, we will explore the patient experience with palliative care during cancer treatment, the benefits of palliative care, why it is helpful, and when it should be incorporated into cancer treatment plans.

The Patient Experience with Palliative Care during Cancer Treatment:

Palliative care is a patient-centered approach that considers the individual needs and preferences of the patient. Patients undergoing cancer treatment often experience a range of symptoms, such as pain, fatigue, nausea, and depression. Patients who receive palliative care during cancer treatment report improved quality of life, reduced symptoms, increased satisfaction with their care, and improved communication with their healthcare team. Palliative care providers work with the patient, their oncologist, and other healthcare professionals to ensure that the patient’s needs are being met, symptoms are managed, and emotional support is provided throughout the treatment process.

Benefits of Palliative Care:

The benefits of palliative care during cancer treatment are numerous. Palliative care can help manage symptoms such as pain, fatigue, and nausea, common side effects of cancer treatment. It can also help patients cope with the emotional and psychological impact of diagnosis and treatment. The palliative care team can help patients understand their treatment options and the potential benefits and risks of each option. This can help patients make informed decisions about their care and improve their quality of life.

Palliative care is helpful because it focuses on improving the quality of life of patients and is patient-centered. Patients undergoing cancer treatment can experience a range of physical and emotional symptoms that impact their overall well-being. Palliative care providers work with the patient to develop a care plan that considers their individual needs and preferences while managing the physical and emotional symptoms being experienced. This approach can help improve patient satisfaction with their care and lead to better outcomes.

When to Incorporate Palliative Care into Cancer Treatment Plans:

Palliative care can be incorporated into cancer treatment plans at any stage of the disease but is recommended to be incorporated early in the disease process. This can help patients manage symptoms and improve their overall well-being throughout the treatment process. Patients who receive palliative care early on in the disease process have been shown to have improved quality of life and reduced symptom burden. Palliative care can be provided alongside curative treatments or as the main focus of care in the advanced stages of the disease. Palliative care can also be provided to patients who are not receiving active cancer treatment.

Conclusion:

Palliative care is a patient-centered approach that aims to improve the quality of life of patients undergoing cancer treatment. Patients who receive palliative care during cancer treatment report improved symptom management, increased satisfaction with their care, and improved communication with their healthcare team. Palliative care can be provided at any stage of the disease process, but early incorporation is shown to improve patient outcomes.  The benefits of palliative care during cancer treatment are numerous and can help patients and their families navigate the disease while improving their overall well-being.

 

How Technology Impacts Education and Patient Experience

Posted on by Jenni Daniel BSN, RN

Cancer diagnosis and treatment can be a challenging and complex process, often requiring a multidisciplinary approach involving physicians, nurses, social workers, and other healthcare professionals.  From diagnosis through survivorship, patients require education about their condition, treatment options, and available resources. In recent years, technology has played an increasingly important role in patient education, providing access to reliable information and support from healthcare professionals and other patients.

In this article, we will explore how technology impacts education for the patient experience from diagnosis of cancer through survivorship, the benefits of technology use, downsides, and the importance of accurate cancer education by providers, whether using virtual or in-person platforms.

One of the primary benefits of technology use in cancer education is the ability to provide patients with access to accurate, up-to-date information about their condition. Online resources such as cancer-specific websites, mobile applications, and social media platforms provide patients with information on diagnosis, treatment options, and side effects. This information can help patients make informed decisions about their care and empower them to advocate for themselves during treatment.

Additionally, technology can facilitate communication between patients and their healthcare providers. Virtual platforms, such as telemedicine, allow patients to receive a consultation and follow-up care remotely, reducing the need for some in-person visits and improving access to care. Patients can also use digital tools, such as electronic health records and online patient portals, to communicate with their healthcare providers between appointments and access their medical records. This helps patients stay informed about their care and better understand their treatment options.

While technology has many benefits for cancer education, there are downsides to its use. One of the most significant downsides is the risk of misinformation. With the abundance of information available online, patients may come across inaccurate or misleading information about their condition, which can lead to confusion, stress, and anxiety. Patients may also be tempted to rely too heavily on technology, neglecting in-person interactions with their healthcare providers, which are crucial for patient care.

Despite these downsides, the importance of accurate cancer education by healthcare providers cannot be overstated. Whether using virtual or in-person platforms, healthcare providers must ensure that the information they provide patients is accurate, up-to-date, and easily understood. This can be achieved through patient-centered communication and education programs that consider the patient’s cultural background, literacy level, and language barriers.

One top benefit of accurate cancer education is improved patient outcomes. Patients who are well-informed about their condition and treatment options are more likely to make informed decisions about their care, participate in their treatment plan, and adhere to their medication regimen. This can lead to better patient outcomes, such as increased survival rates and improved quality of life.

Overall, technology has revolutionized cancer education, providing patients access to accurate information, resources, and support. While there are downsides to the use of technology, such as the risk of misinformation and the potential for over-reliance, healthcare providers must ensure that patients receive accurate cancer education, whether using virtual or in-person platforms. By providing accurate information, healthcare providers can empower patients to make informed decisions about their care, improve patient outcomes, and enhance the patient experience from diagnosis through survivorship.

 

How Communication Impacts The Patient Experience

Posted on by Jenni Daniel BSN, RN

Effective communication is crucial for any successful relationship, including the one between healthcare providers and their patients. When it comes to cancer diagnosis, treatment, and survivorship, the importance of effective communication cannot be overstated. Patients are often frightened, overwhelmed, and anxious about their diagnosis and treatment. Effective communication can help alleviate some of these feelings and improve the overall patient experience.

Poor communication by providers can have a significant impact on the patient experience. Patients may feel unsupported, ignored, or dismissed by their healthcare team, which can lead to feelings of mistrust and dissatisfaction. Patients who feel their providers are not listening to them or are not providing them with adequate and honest information may be more likely to experience negative emotions such as anxiety and depression.  Which may cause some to not proceed with recommended treatments and /or follow-up care.

On the other hand, good communication by providers can positively impact the patient experience. Patients who feel heard, understood, and supported by their healthcare team are more likely to feel confident in their care and to have a more positive overall experience. Effective communication can help patients understand their diagnosis and treatment options, which can lead to more informed decisions and better outcomes.

Effective communication also plays a crucial role in survivorship. Patients who have completed their treatment and are transitioning to survivorship need to feel supported and informed about what to expect during this phase. Good communication can help patients understand the long-term effects of cancer treatment and what steps they can take to manage these effects. It can also help patients feel more empowered and in control of their health.

There are several key components of effective communication in cancer care. These include:

  1. Active listening: Healthcare providers should listen to their patients’ concerns, fears, and questions. Patients should feel their healthcare team is listening to them and taking all of their concerns seriously.
  2. Clear and concise communication: Healthcare providers should use clear and concise language when communicating with patients. Patients should understand their diagnosis, treatment options, and what to expect during their care.
  3. Empathy: Healthcare providers should demonstrate empathy towards their patients. Patients should feel that their healthcare team understands and cares about their emotional and psychological well-being as much as their physical health.
  4. Timely communication: Healthcare providers should communicate with their patients in a timely manner. Patients should feel that they are being kept informed about their care and that their healthcare team is responsive to their needs. 

Considering all this, effective communication by doctors and nurses plays a critical role in the patient experience during cancer diagnosis, treatment, and survivorship. Poor communication can lead to negative emotions, mistrust, dissatisfaction, and poor outcomes. While good communication can lead to greater confidence, informed decision-making, and improved outcomes. Healthcare providers should prioritize effective communication as essential to quality cancer care.

If you need assistance communicating with your providers, please look at the Support Organizations section of the CancerGo app or reach out directly to mynurseathome1@gmail.com.

Patient Experience and Cancer Survivorship

Posted on by Jenni Daniel BSN, RN

A patient’s experience during cancer treatment can have a significant impact on survivorship. Survivorship, in the context of cancer, refers to the process of living with, through, and beyond cancer. Cancer treatment is often a challenging and difficult journey, and the way patients are treated and cared for can have a significant impact on their emotional and mental well-being.

The patient experience during cancer treatment can affect how patients see themselves as survivors. Cancer treatment can be a difficult and isolating experience, and patients who receive poor care or treatment, or lack mental health support, may feel disillusioned and hopeless about their chances of survival. Conversely, patients who receive compassionate, high-quality care along with mental health management may feel supported and hopeful, which can contribute to a more positive self-perception and a greater sense of resilience.

Being a cancer survivor means different things to different people. For some, it means having a renewed appreciation for life and a commitment to living each day to the fullest. For others, it means struggling with the long-term physical and emotional effects of cancer treatment. For many survivors, it is a combination of both. Regardless of the specific experience, being a cancer survivor is a significant and life-changing event that requires ongoing support and care.

Moving on as a cancer survivor can be a complex and challenging process. Many survivors experience ongoing physical and emotional effects of cancer treatment, including fatigue, pain, and anxiety. Additionally, survivors may struggle with feelings of guilt or survivor’s remorse, along with uncertainty about the future. Moving on requires a commitment to self-care, including physical and mental health, as well as social support and community engagement.

Research has shown that the patient experience during cancer treatment can impact survivorship in several ways. Patients whose perception was high-quality, patient-centered care during cancer treatment are more likely to have better outcomes, including higher rates of survival and improved quality of life. Additionally, patients who receive emotional and psychological support during treatment are more likely to experience improved mental health outcomes, including reduced anxiety and depression.

The patient experience during cancer treatment also impacts survivorship by influencing one’s perception of their illness and their ability to cope with it. Patients who feel supported and cared for during treatment may have a greater sense of control over their illness, which can contribute to a greater sense of self-efficacy and resilience. Conversely, patients who feel unsupported or neglected during treatment may experience a sense of powerlessness and hopelessness, which can contribute to poorer health outcomes and a diminished sense of self-worth.

In summary, the patient experience during cancer treatment has a significant impact on survivorship. Patients who receive high-quality, patient-centered care during cancer treatment are more likely to experience positive outcomes, including improved mental and physical health, greater resilience, and a more positive self-perception as survivors. Moving on as a survivor requires an ongoing commitment to self-care, including physical and mental health, as well as social support and community engagement. By prioritizing the patient experience during cancer treatment, healthcare providers can help improve survivorship outcomes and support patients through their cancer journey.

 

For more help with survivorship and cancer, please look at the Support Organizations section of the CancerGo app or reach out directly to mynurseathome1@gmail.com.

 

Acknowledge the Struggles of Those Affected by Cancer

Posted on by Vino Cherian

It is not easy to face Cancer alone. But by recognizing the hardships that come with it, we can show compassion and support that gives patients the strength to carry on. Acknowledging cancer patients’ struggles lets them know that their fight matters and that they are not alone. This gesture of compassion and support can be incredibly powerful for those on this challenging journey. It conveys a message of understanding and acceptance and lets them know that YOU care about them meaningfully. By simply recognizing the hardships that come with dealing with Cancer, both physically and emotionally, you are showing your respect for what they are facing.

Acknowledging the challenges of chemotherapy, radiation treatments, side effects from medications and other treatments, fatigue from frequent doctor visits or hospital stays, and fear of the unknown—everything that comes with coping with Cancer—will offer recognition of their strength and courage as they face these obstacles head-on. Furthermore, it will help to let them know there is hope despite feeling overwhelmed by the situation. Such acknowledgment can also reassure those uncertain about their future after diagnosis. Not only does it help remind patients that they are seen and valued throughout this process but it allows them to feel empowered even in moments of doubt or despair.

So, go ahead, say it; whether it is a simple “I am here for you” or a heartfelt “I love you,” acknowledging their fight lets them know that their journey matters and that they are not alone. By showing respect for what they are facing, we convey a message of understanding and acceptance that can be incredibly powerful. So don’t be afraid to reach out and show your support. Your words and gestures can make all the difference.

Acknowledging the struggle makes them feel they ‘MATTER’ to you.

Financial Transparency and Patient Experience

Posted on by Jenni Daniel BSN, RN

The patient experience related to financial transparency during cancer treatment is critical in ensuring that patients receive the best possible care and can manage the financial burden associated with cancer treatment. This experience can impact how patients perceive the cost of treatment, their ability to make informed decisions if they cannot afford treatment, and their mental health.

 

Patients who have a positive experience with financial transparency during cancer treatment are more likely to feel empowered and in control of their health and healthcare expenses. When patients receive clear and transparent information about the costs of treatment, they can make informed decisions about their care, which can improve treatment adherence and overall outcomes. Patients who are well-informed about the cost of treatment are also more likely to be prepared for any financial burden, reducing stress and anxiety related to the cost of care.

 

On the other hand, patients who perceive a lack of financial transparency may feel overwhelmed, frustrated, and uncertain about their ability to afford treatment. They may be hesitant to, or not to, seek necessary care if they are unsure about the costs, which can negatively impact their health outcomes. Moreover, if patients cannot afford treatment, they may face difficult decisions, such as delaying or forgoing necessary care, which can have severe consequences on their health and well-being.

 

The impact of financial stress on mental health is well documented. Financial stress can cause anxiety, depression, and other mental health disorders, which can negatively impact a patient’s quality of life, treatment adherence, and outcomes. In addition, patients who cannot afford treatment may experience feelings of guilt, shame, and hopelessness, which can further exacerbate their mental health conditions.

 

Healthcare systems and providers need to provide patients with clear and transparent information about the costs of cancer treatment. They should be able to explain what is covered by insurance, provide an estimate of the total cost of treatment, and outline any out-of-pocket expenses. Providers should also be prepared to discuss financial assistance options, such as payment plans, financial assistance programs, or alternative treatments that may be less expensive, yet still effective.

 

If patients cannot afford treatment, there are various options available to help them manage the financial burden of cancer care. Patients need the ability to work with their healthcare providers to find less expensive treatment options or negotiate payment plans. Additionally, there are various financial assistance programs available for patients who meet certain eligibility criteria. Patients should not hesitate to speak with their healthcare providers about their financial concerns and explore all options available to them.

 

In conclusion, the patient experience related to financial transparency during cancer treatment is crucial to ensure that patients can manage the financial burden of care and make informed decisions about their health. Clear and transparent communication about the cost of care is essential to empower patients and improve their overall outcomes. Healthcare providers and systems should be prepared to discuss financial assistance options with patients who cannot afford treatment and support them throughout their cancer journey.

For more help with financial assistance during cancer, please look at the Support Organizations section of the CancerGo app or reach out directly to mynurseathome1@gmail.com.

 

Feedback/Question

We would love to hear your thoughts or questions.

Please fill and submit the form below and one of our program evangelists will reach out to you shortly.
Protected by reCAPTCHA
Terms of Service& Privacy Policy

Thank you for recommending your support group!
We will be reaching out to invite your group to participate in our network.

Request to Access was submitted

A specialist with this email already exists in cancerGO

Request Physician/Specialist Access

We are excited about your interest in cancerGO! Physicians/specialists provide deep insights, novel clinical methods, and invaluable advice to patients, their loved ones, and the broader community.

Please fill below to request early access and we will get back to you shortly with further details.
Protected by reCAPTCHA
Terms of Service& Privacy Policy